The boy's name Samuel is of Hebrew origin, and its meaning is "God has heard." Also possibly as "requested of God", "God's heart" or "God's name."

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Friday, February 09, 2007

Four weeks old!





Sam weighed 6lbs 5oz yesterday - he is getting more and more alert, I am waiting not so patiently for that first smile :-)

Friday, February 02, 2007

Thursday, February 01, 2007

14oz in 10 days, not bad huh??

So Master Samuel is now weighing in at a hefty 5lbs 15.5 oz...

Fitting nicely into some newborn clothing my brother sent up here as well (thanks Pete and Kim!)

I stopped pumping on Saturday and Sam has been exclusively nursing, and it looks like we are good to go, I am going to return the pump to the hospital! In the 10 days or so we pumped my supply got a 'tad' too high, lol - so the first few days without pumping was a *bit* uncomfortable and messy (sorry guys at Ray's work for a bit too much information...).

We also have a ton of stored EBM in the freezer so Nana and Papa can watch Sammy when we go to a movie or something, and he will be able to eat!

He is a joy! All seems to have fallen into place, and we are happy - all 5 of us - Caroline and Christopher love their little brother, and I know he is going to adore them.

I took Sam by the Peri's office today, I just had to show Dr. S what he did for us in being willing to TRY something, even though things looked SO dismal there for a while. He said I will take credit, but I wish I knew what I was taking credit for... I told him thank you for treating me even though he didnt think the baby would make it -

He told me, a mentor of mine told me once, it is better sometime to be lucky than right - so very true!!

That's all for today, from a very happy woman...

Catherine

Friday, January 26, 2007

Photo Montage


Ray was asking me to put together some photos to print - here it is!

Click for full sized version, and yes I know, no pictures with mom yet...

Tuesday, January 23, 2007

Some more pictures taken today...

The boy was hungry, so Mom made him wait and took some pictures!




Monday, January 22, 2007

Weight check and some pix

We went to the Dr this am, and Sam is up to 5lbs 1.6oz- so all is looking good there, that is up 6.1 ounces since his visit last monday and above birth weight!


Here is Ray with Sam, so sweet!











Here are some pics of my beautiful older kiddos holding Sammy...

The outpouring of love I feel towards all 3 when I see them together is overwelming!


Saturday, January 20, 2007

Our little man had a very hard week...

Sorry for being MIA, but we had a really really hard week, good news is all is on the upswing and we are home...

We came home from the hospital on Saturday, and all seemed fine. Sam was a little fussy, but to be expected. Caroline asked me about some twitching he was doing, and I didn't see it, and I told her newborns are kinda like that, they have jerky movements etc-

Saturday night and Sunday it became apparent to me something else was going on - it was becoming increasingly apparent he was having very rhythmic twitching after some neck arching and mouth movements/gagging when he was trying to go to sleep- I was still trying to shake off the feeling something was wrong -

Sunday night and Monday, it was happening every time he was trying to sleep, and getting worse, after the neck arching etc and before the twitching he would scream, my little boy was having seizures, I was beyond myself with grief - Ray had seen it happen, but was not convinced until Monday that there was something actually wrong - We made an appt to go to the ped a day early, and went in and described what was happening - She said it sounds like seizures, but because it is only happening in the wake/sleep transition that is a very good sign, and because they are short he is at little risk - Said we don't need to be admitted, but she was setting us up with a Neuro appt for the next day.

We got home after the appointment and it happened 2 more times, with increasing severity, he was screaming a bit longer and very inconsolable afterwards - we went into ER -

There the nightmare really starts, my poor innocent boy, just days before warm and cozy in my womb, started the medical journey from hell.

He did end up demonstrating a seizure in ER when they were trying to take blood for the first time...and the Dr saw it, so we are tagged for admission. In the ER they took blood(took 2 tries) attempted, a lumbar puncture(failed but poked him anyhow), got an IV started in his head(took tries on both sides) and cathed him for a urine sample. WE also got chest exrays and a ctscan of his head.

His blood sugar was very low, 37, despite eating an hour before, so they put a glucose solution into his IV(ER didnt have the right strength, so doubled the volume on the lower concentration, ped was pissed)

His calcium was low, and they said that could contribute to the seizures.

WE got up into a room and the admitting ped saw a seizure, and noted how it looked and said this isnt an all over brain seizure, but a localized seizure in the motor cortex.

By morning, they had really decreased in severity, much shorter and milder - as a side note, I have not recounted both the troubled pregnancy story and every minute detail of his seizures to at least 1/2 a dozen people, with many more to do in the next 2 days)\

But I was still so fragile, the woman came to draw blood and my tears just start flowing, I just cant stand to hear my boy hurting, and again, it takes 2 tries to get it, with me holding him down again telling him it will be ok...

The pediatric neuro came in, I really like him, said we should get an MRI and do 24 hours ov video EEG - but maybe should wait a little bit to see if they go away as the calcium etc comes up.

That day, Tuesday, was horrible, I was still working on no sleep
since I just had him on Friday, the ped orders the MRI and video eeg- he had an MRI at like 2, they didnt want to sedate him, so wanted him to be asleep, which he was when we strapped him into the machine, I sat in the room where it was done, with earcovering, and it was so loud, I was just so sad for my boy, after 30 min of this he come out looking like he was in a coma, they say look he slept through the whole thing, I told them no way, he shut down to prevent the assault.

We get back up to the room and have about 40 min for him to eat, and they I wanted him to sleep, but the EEG people come in -

They procced to epoxy glue 20 leads on his head with the most rancid smelling glue, and the tech is having me help hold again. He was so tired, and again being held down and manipulated was too much for him (and me).

He started to seize again, this time like 4 in a row, I ask him to wait, I just wanted to hold him and comfort him, but he was half connected- I call the nurse, tell her to talk to the neuro because I think they need to start the seizure meds( we were waiting because things seemed so much better in the am, and ask her to get someone else to help him hold Sam, I was done.

I went out into the hall and sobbed, uncontrollable, just sobbed - Ray got there about then, he hadnt talked to me since before the MRI - and I broke down even more-

The eeg stuff gets done, and it is discovered EEG man has disrupted the IV on the head so we cant give the phenobarbital until a new IV is placed- more stress on Sam, I still can't hold him he is STILL crying, and on and on -

They get him the meds and he still has 3 seizures, captured on video this time. Neuro calls me and tells me he wants him moved to PICU for now as he will need another loading dose of pheno, and it can effect respiration etc- I cry, I cant stay there with him etc, I need to pump, etc-

PICU staff comes in and talks to us, I feel a bit reassured because he will be well taken care of.
Anyway, he gets moved, we visit him then go home, I was running on about 10 hours total of sleep since he had been born, and needed a little rest. Slept a few hours that night, got up to pump for him, etc.

They next day he was totally out of it, but not hurting, and not having any more seizures. He needed most of his food via NG tube, as he wouldn't stay awake to suck the bottle. The eeg 'hat' was heavy and cumbersome though. They converted is pheno dose to a normal maintenance dose wednesday. We stayed all day and I pumped so he would have enough milk for the rest of the night, then we went home, pumped and slept -

I felt much more human on Thursday, they took his eeg head stuff off thursday morning, (with acetone, poor baby) and he was mad, pulled the NG tube out, and was happy to have the stuff off his head. I asked the PICU staff if we can go back to an on demand feeding schedule, as the every 3 hr schedule wasnt a good one for him, he wants to eat less more often.

So, for the rest of the day, we have a baby again, he eats, he is awake when he should be - We get moved back to a normal room, and he is amazingly wonderful, waking to eat, big eyed and beautiful, and not seizing. I stayed there Thursday night. Oh, on Thursday we find out his urine culture from the ER comes back positive, he has a UTI, so we get an ultrasound, and I have to go back as an outpatient get get another test run on him to rule out urinary reflux, treatment is a daily antibiotic to prevent infections. I bet he is perfect though, and the catch was contaminated in the ER.

We came home yesterday with a baby that is perfect, on the meds for 3 months and will taper off - The MRI and everything came back normal, no brain lesions etc- they think the seizures wont come back, and were prob caused by some sort of brain immaturity due to his womb experience, and possibly triggered by the low glucose/calcium.

The neuro said he was demonstrating alot of preemie signs, even though he was full term, the low glucose, inability to maintain body temp etc-

So we are home, had a great night last night and I truly think the worst is behind us. I am still pumping and bottle feeding, as he is so small, he wasnt sucking hard enough to get enough food. The lactation consultant thinks as long as I keep my supply up we should be able to get him back on the breast without too much difficulty, I really hope so...

So even though you all didn't know what was going on this week, I could feel your strength with me, all the prayers said have helped us through another challenge, seemingly no worse for wear and possibly in better shape than before.

If you actually were able to read all of this, I applaud you!

Catherine

Saturday, January 13, 2007

This is the post I have dreamed of making since I was 20w pregnant...


Samuel is here, and he is healthy! He in his complicated style wanted to scare us during his delivery - he wouldn't maintain a nice baseline heartrate - and after getting complete to 10cm, his heartrate dropped into the 60s (I wussed out and got the epidural at 7-8 cm, what was I thinking, why would i want a natural childbirth with pitocin!) I was totally numb, but the dr said this baby needs to be born now, can you push? I said I can - and 2 min later he was born, with his cord around his neck 2x! What a complicated little man huh??

He came out crying - he pinked up quickly - he is healthy!

He weighed in at 5lbs even, and 18 inches long, Ray and I just cried at the sound of his little voice. He came into this world at 4:20 yesterday afternoon.

The Dr told the ICU dr that was on hand for the birth - this is a miracle baby, termination was recommended, and virtually no hope was given.

He stayed with me in my room last night, and we should be going home today - he nurses better than my other 2 kids ever did so early on - I will get pictures up ASAP!

Catherine

Thursday, January 11, 2007

12 hours from now...

In 12 hours we leave the house for the hospital...

I took my last heparin shot this am...

I have been having sporadic contractions since Tuesday, probably not productive, but I hope they mean my body will be receptive to the induction!

This is the last day in my life I will be pregnant, kinda bittersweet...but we are REALLY ready to meet this little guy. I still pray every time I think of birthing him that he comes out screaming, healthy lungs and all. I still find it surprising the doctors don't caution me to be ready for problems...

After all the doom and gloom at 20 weeks, I think maybe it was to prepare me to lose him all together, that they thought he wouldn't make it to viability. We are so lucky to be where we are today, against all odds, having a full term birth of this miracle baby.

Please God, help him breath and be strong so he can come home with us with no complications...

How much will Samuel weight? Ray guesses 5lbs 2 oz - I guess between 4lbs 12 oz and 5lbs 5oz (I of course have to take the 4lbs 7oz and do the +/-10% blah blah blah and go from there, lol.

We should have the laptop with us at the hospital and the digital camera, and will update from there! Wish us luck, I am not scared, but quite anxious!

Catherine

Friday, January 05, 2007

The end stretch...

I am being induced next Friday the 12th, at 5am, 38w5d -

My peri is out of town, and he said, darn, i wont be back till Monday, and you will be out of here by then, be sure to bring the baby by and let me meet him!

Man, being talked to and treated like everything is ok - I am still pinching myself...

He is trying to correlate my experience with the heparin use - the possible autoimmune/clotting/placenta degradation during my acute episode and the hep stopping it - so the placenta will go to pathology and he is having a complete autoimmune panel run on me post delivery - i hope he can somehow make some correlation so it might help someone else.

This time next week Ray and I should be holding our son, wow, wow....

Catherine

Wednesday, January 03, 2007

Alas, no more progress....

No stripping of the membranes- i am still 1cm 50%, but this time baby is not engaged at all, I am at a 3 station!

So...my hopes for going on my own before 1/12 are kinda dashed, so I will contently enjoy the last 9 days of my precious miracle inside me :-)

Negative results for Group B strep tho, which is good news, no need to antiboitics during labor.

Catherine

Friday, December 29, 2006

Induction date!

Induction date is set for 1/12 at 5am, 2 weeks from today!

I am still hoping to go on my own before that, Dr C will sweep my membranes next thursday, maybe that will do the trick :-)

Catherine

Wednesday, December 27, 2006

4 lbs 7 oz

Woo hoo! 4 lbs 7 oz! ok not huge, lol, but for this baby it is tremendous!

BP today was 118/71 - i feel SO lucky to be where I am today after my first post at 18w3d, where I was in terrible shape, I am 36w2d


Sam had nice weight gain in the last 3 weeks, he is a chunky 4lbs 7 oz, and looked good on his BPP and NST-

The plan now is to have a baby :-) If I go into labor on my own they wont stop me, but Dr O did tell me to go straight in to be monitored, to make sure he handles the contractions well enough.

If I havent gone into labor on my own by my last appt on 1/9, they will schedule an induction for that week.

No more than 2.5 weeks left until we meet sam!

And, look at what Caroline MADE for her new baby brother, a beautiful double sided fleece blanket! It had both Ray and I in tears, she is so sweet :-)



Catherine

Friday, December 22, 2006

I had a regular OB appt today, after my NST at the peri's (all good there, Sams HR was good, my BP was good)

Had a step b test, and an internal - 1 cm and 50% effaced at 35w4d, better than i have ever been this early!

How I would LOVE to go into labor on my own. She was felt his head too, he is fully engaged!

Catherine

ps. i refused to get on the scale, lol - the nurse was a little snippy, but i told her if Dr C wants me to get on I will.... Dr C said, no worries! After all this pregnancy has been who cares about your weight

Wednesday, December 20, 2006

The math as I see it...

Ok I have a 14 year old in algebra so here is my equation...

known values...

Sams last weight :1300grms
Weight 17 days prior 911 grams
Weight gain per day:
(1 300 - 911) / 17 = 22.8823529 (did you know you can type that into google and it figures it for you?

So, on Tuesday it will have been 22 days since the last growth u/s, if he is maintaining the same rate of growth he will weigh...

(((1 300 - 911) / 17) * 22) + 1 300 = 1 803.41176

1803
.41176 Grams or...

1 803.41176 grams = 3.97584236 pounds

Just about 4 pounds... I will be 36w2d, I am praying he has kept up or increased his weight gain...If it has slowed down I think we have got to assess if he would be better outside me than inside me!

Thursday, December 14, 2006

Wee! That was fun...NOT...or my 3 hrs in L&D triage...

Ok...my little man was to have a non eventful NST this am, got there, got hooked up, he started dancing around, and his heartrate plummeted into the 60's! For over 30 seconds!! I thought he was dying...so scared. I called the nurse in, she got the Dr, he said you just bought yourself a visit to the hospital, but lets do a quick u/s first.

Fluid was awesome and cordflow normal, he looked closely at the cord and said there are no knots, but there isnt alot of gel around it, so minor compressions can show the decels. I guess the cord is not as protected on the outside as some.

Send me to L&D, where Sam was a perfect gentleman, and showed nice accels and no decels. His heartrate baseline is much slower that it has been, in the 1hundred teens to 120- even saw some low 100s but I guess this isnt something so scary, it seems odd to me, but i guess now from what they tell me.

So, he gave me a heart attack, probably not the last time, but hopefully the last time until he is 13...

Catherine

Monday, December 11, 2006

34w1d

We had a BPP ultrasound today, and Sam passed his tests again this week, good boy! The S/D ratio on the cord flow was slightly elevated, not alarming, but they will watch it, it was 3.07 and normal is between 2 and 3 I believe. Good news is now if there is a problem we will deliver a baby, not go into the hospital on bedrest. At my next BPP I will be 35w1d, I am SO thankful we have made it so far - 37 weeks is considered full term, and that is less than 3 weeks from now!

Raymond is on his way back from Michingan. His mom is still hanging on in the hospice center, just agonizing, she knows she is dying and is in pain when the morphine wears off :-( . I pray she can pass peacefully soon. I am counting the minutes until I can get Ray from the airport and hold him tight.

Thank you all again for all of the good thoughts and prayers you send our way, I don't think I would be where I am now without them.

Catherine

Friday, December 08, 2006

Baby Registry


For those who have asked me to, I did a registry at Babies R Us online, registry number is 33701914.

I certainly don't expect anything, if nothing else looking at the stuff got me excited to meet this little boy and anticipate what his needs will be!

Thanks all,

Catherine

Thursday, December 07, 2006

Ray's Mom is dying :-(

Raymond is back in Michigan right now with his parents and siblings, his mother is in hospice and not expected to make it more than a few more days, she is 84. I am very sad for him, we were so hoping we could take Sam out to meet them next summer. His father, 74, is taking this very very hard, and has said he has no desire to live once she passes. They have been married for 50 years and this just breaks my heart, I pray his children give him the strength he needs to live after this.

Mr. Sam passed his NST this am with flying colors, and my BP was a nifty 101/75 - so at least we don't have to worry about Sammy at this moment.

Catherine

Monday, December 04, 2006

33w1d

Little Sam is still a little guy- weighing in at a whopping 2.9 lbs right now-

He gained .9 lbs in a little less than 3 weeks, so, if he keeps at the same rate until 39 weeks we are looking at about a 4.6 lb baby, I feel sad my body failed him in the growth department, and hope he comes out healthy and ready for mama milk to help him catch up.

His growth restriction still puts him in the 1 th percentile, and is still asymmetrical, meaning his head is just about the right size for gestational age, but his abdomen and legs are small- this is a "brain sparing effect".

Fluid is still good- over 15.

I wonder if me coming out of the hospital, and going off the sedating drugs slowed his growth- when i was sedated, so was he- maybe he burnt less calories? I don't think this would be the answer, but just wondering. Cord flow and placenta look good.

A normal size baby at this point of the pregnancy should start putting on like 1/2 a pound a week, which would put him at almost 6 lbs at birth.

Dr said if he had to guess he would say he will weigh about 2 kilos at 39 weeks, which would be 4.4 pounds.

So I am continuing to pray and hope this little guy keeps packing on the weight and has healthy lungs, and appreciate all the good thoughts you guys send my way!

Catherine